Patricia Dean, ARNP, MSN is Clinical Coordinator of the Comprehensive Epilepsy Center at Nicklaus Children's Hospital in Miami, Florida. Patricia Dean received her BS in Nursing from Downstate Medical Center and her Masters of Nursing at the University of Miami. Ms. Dean is nationally recognized for her work with children with epilepsy and has been involved with the consumer side of epilepsy on local, state, and national levels. She was formerly a Board member of the Epilepsy Foundation of America and is Immediate Past President of the Epilepsy Foundation of Florida. She is the recipient of the Volunteer of the Year Award from the national Epilepsy Foundation organization. She served on the Governor’s Task Force on Epilepsy. Dean is a highly sought-after lecturer and has published numerous articles. Her research interests are on the antecedents of developmental pathology in intractable epilepsy and self-management skills in epilepsy. The Foundation’s new annual award, the Beacon Award, was renamed the Patricia Dean Beacon Award in 2012 in honor of Pat’s “diligent and tireless efforts to improve the lives of those living with epilepsy through exceptional and passionate care services”.
Steve is a governmental and public affairs strategist from Tallahassee, where he’s led Democratic campaigns and advised corporate clients for more than sixteen years. Steve began his career in Florida politics in 1996, where he managed the political efforts and legislative office for State Representative Doug Wiles. In 2002, he moved to Tallahassee becoming the Communications Director for the Florida House Democratic Caucus and in 2005, Schale stepped over to the Florida Democratic Party to run their State House political operation.
In 2008, Schale was tapped by then Senator Obama to run his successful Florida operation, and again in 2012 by President Obama to serve as his Florida strategist. In 2010, he served as Senior Advisor to Dan Gelber’s successful Attorney General primary win before becoming a Senior Advisor to Alex Sink’s campaign for Governor. Steve has been named one of Florida’s most influential political figures by the Tampa Bay Times, Campaigns and Politics Magazine, and was named one of the top 100 Movers and Shakers in Florida by Florida International Magazine.
Today, Steve runs Schale Strategies, which assists corporate clients with their governmental and public affairs needs, serving clients such as Walt Disney World, AT&T and the Florida Hospital Association. He is also serving as a Senior Strategist for Gwen Graham’s race for Congress in the 2nd Congressional District of Florida. Steve is a graduate of the University of the South in Sewanee, TN with degrees in History and Political Science and has an MA from Florida State University in Communications. A native of the Chicago area, Steve grew up in St. Augustine and has lived in Tallahassee for the last decade with his wife Nikole, who is a Regional Vice President with the American Heart Association.
Sara Widing graduated from Ohio State University with a Masters and Bachelors of Science in Health Service Administration.
Sara works as the Brain Institute Service Line Administrator at the Nicklaus Children’s Hospital – Miami Children’s Health System where she leads and oversees Brain Institute daily operations and strategic planning for health system including hospital, ambulatory and employed physician practices.
Prior to working at Nicklaus Children’s Hospital she served in a variety of senior executive and managerial positions at the Ohio State University Wexner Medical Center. Sara has more than 15 years of operations management and strategic planning experience in healthcare industry and experience building and implementing cross-functional, strategic, and business planning programs.
A. G. "Terry" Newmyer III
A. G. Newmyer III is a "lifer" in the epilepsy community. Known as "Terry," he had a couple idiopathic seizures during his teenage years (the last was 50 years ago) and has spent decades trying to help others with the disorder, particularly kids.
Terry has had a diverse business career and is the founder of The Newmyer Organization, based in Palm Beach County, focused on a broad array of investment and consulting activities.
Terry served for almost 20 years on the national board of The Epilepsy Foundation. He held several officer positions -- including Treasurer -- and was on the executive committee as well as the search committee to recruit the CEO. Terry chaired The Governor's Council in the late 1990's, an organization to recognize the foundation's largest donors. After moving full-time from Washington, DC, to Florida at the end of 2004, he joined the EFOF board and was nominated by our organization as an affiliate director of the national organization. Over the years, he was asked to chair the national and state organizations; he declined due to time constraints and other commitments.Terry, a graduate of Yale, has served on numerous boards of non-profit and business organizations. He has four children and two grandchildren.
Member at Large
Daniel Acevedo is a Miami native who graduated from Florida International University with a Business Administration degree. He works as a VNS therapeutic consultant with LivaNova, formerly known as Cyberonics. Dan has extensive knowledge across multiple therapeutic areas and he has been a loyal supporter of our Foundation and participated in several walks over the years. Dan has advocated for our Foundation to the tri-county Neurologist networks and he has assisted with the introductions of new doctors. Thanks to these introductions, we acquired Dr. Zakaria as a wonderful Board Member. Dan continues to support and sponsor EFOF events and programs.
Adam Adache has extensive experience in various aspects of the real estate industry including finance, acquisition, development and construction. He is a managing partner of Cavache Properties, a real estate development and Investment Company and manages the various aspects of the day to day operations of the company. As a principal in various entities he has been involved in multiple commercial, multifamily and residential real estate projects throughout the state of Florida. He currently serves as managing partner of Adache Real Estate and is a partner in Adache Group Architects. Adam is also a principle and co founder of Cavache, Inc. a dredging, marine and land development contractor that has site developed over 2,000 acres of land throughout the state of Florida and has performed dredging and marine work for various private and public entities. He is a certified licensed General Contractor and a licensed Real Estate Broker in the State of Florida.
Adam lives South Florida with his wife Monica and two daughters, Maya and Ana Camila. His oldest daughter Maya has suffered from intractable epilepsy since having her first seizure at 6 months old. She has been on multiple medications throughout her life and had brain surgery at the age of 8. Adam and his family continue to fight the fight. They know firsthand how Epilepsy and many of the associated health issues can affect a family. Finding a cure, new treatment options and improving the lives of patients and families that suffer from Epilepsy is very important to Adam and his family.
Beth Alcalde serves as managing partner of Akerman’s Palm Beach County offices. A noted employee benefits lawyer, author, and speaker, she represents Fortune 500 companies and other public and private entities, including those in the hospitality, healthcare, and higher education sectors, throughout the United States.
Beth provides counsel on employer-sponsored benefit plans, from compliance with ERISA, the Affordable Care Act, and other federal regulations, to internal audits and benefits-related implications of corporate transactions. She assists clients in defending and responding to audits conducted by the Internal Revenue Service (IRS), U.S. Department of Labor (DOL), and U.S. Department of Health and Human Services (HHS).
Beth is a contributing author on benefits compliance topics for the Employee Benefits Institute of America and a frequent speaker on employer compliance, privacy, and security issues. She has been recognized as a “Power Leader in Law” and one of the “Top 25 Influential Business Women” by South Florida Business Journal.
Michael J. Bowen
Michael J. Bowen began his career in domestic and international banking before moving into commercial real estate development. At an early age, Michael was one of the top 50 developers in the United States and the State of Hawaii’s largest developer. By the age of 40, Michael was appointed as the National Republican Congressional Committee of Michigan Co-Chair. Over the course of his career Michael has negotiated over $1 billion in capital markets transactions and has a 100% entitlement track record. Mr. Bowen has also branched into a variety of charitable initiative including establishing and funding Central Michigan University’s School of Real Estate Development which bears his name. Michael now dedicates his time to venture philanthropy and political activism.
Don Brennan served as the chief merchandising officer and senior executive vice president at Kohl’s Corp. from September 2007 to April 2014 and served as its executive vice president, general merchandise manager, from April 2004 to August 2007. Prior to joining Kohl’s in 2001, Don served as senior vice president and general merchandise manager at Burdines Department Stores, a division of Federated Department Stores, Inc. He is a graduate of Marquette University with a degree in Business Administration.
J. Jose Campos
J. Jose Campos or most commonly known as “Chamby” has an extensive career as a broadcaster for Spanish TV and radio. He now hosts a daily show at WWFE, La Poderosa 670 am. Mr. Campos has broad professional experience broadcasting various sports including, football, basketball and baseball. His professional career has made him highly known in the Hispanic community. Chamby is the official Spanish broadcaster for all the University of Miami sports games and contributes by writing on a variety of newspapers, magazines and several blogs. Additionally, he is a certified mortgage broker since 1981 and has co-owned and operated his own company.
Nicholas X. Duran
DirectorNicholas X. Duran was elected November 2016 to the Florida State House of Representatives for District 112. Over the years, he has served in a variety of leadership roles in health care and community engagement. Currently he is the executive director of the Florida Association of Free and Charitable Clinics. Nick serves as chair for the University of South Florida Covering Kids and Families State Coalition, is on the board of The Children’s Trust and the Epilepsy Foundation of Florida, and is a member Leadership Florida. He is a native South Floridian and lives in Coconut Grove with his wife Danielle and two kids.
AJ Fabrizio graduated from the University of San Francisco with an undergraduate degree in chemistry with an emphasis in biochemistry. Upon completion of his undergrad degree Fabrizio continued a masters research degree focusing on electron transfer energetics within water and how hydrogen-bonding networks are modulated by solvation of simple solutes. This research lead to better fundamental understanding of the Nobel prize winning theory of electron transfer as well as how it relates to biological systems. Fabrizio’s research culminated in a career path in which Fabrizio specializes in extraction techniques such as supercritical CO2, alkane, chromatography, ethanol extraction, and distillation as well as the application of research to create targeted cannabinoid and terpene profiles that better fit the needs of each patient and their particular ailment. Fabrizio has acted as a biochemical research consultant as it pertains to cannabinoid and terpenoid-based therapeutic applications in California, Nevada, and most recently Florida (10 total successful licenses). In addition, Fabrizio is an expert in of legislation surrounding controlled substances such as the Controlled Substance Act. He works closely with lobbyists and legislators within states such as Florida to help shape legislation and ensure safe sustainable access for medical cannabis and its patients. Fabrizio also serves appointments to the board of the Epilepsy Foundation of Florida along with the Medical Marijuana Advisory Board in Broward County, Florida.
DirectorSteve Feig is the founder and owner of Foreign Parts Distribution, Inc. located in Hialeah, Florida. Mr. Feig received his Masters in Psychology from Mont Claire State College. He has served on the boards of various non-profit and business organizations. For 10 years, Mr. Feig served on the board of the Epilepsy Foundation of Florida and became Board President during his tenure. The founder of the Clayton Feig Fund, he has continuously held annual fundraisers to help support several Epilepsy Foundation of Florida programs for children with Epilepsy. The fund was created in memory of his son, Clayton Feig, who in 1993 at the age of 18 years old, passed away from complications he suffered due to epilepsy. Each year, the Epilepsy Foundation of Florida will select one youth in each location to receive the Clayton Feig Youth Award. The award not only commemorates those like Clayton who battle with seizures, but highlights the important work of those who are dedicated to removing the stigma and misunderstandings that have been associated with epilepsy.
Marques' career experience includes running business, merchandising, buying, and replenishment operations across numerous Fortune 500 retailers in various market and regional capacities for companies like ALDI, Sam's Club, & Walmart. In addition, he currently serves as the Health & Wellness Director for Walmart Neighborhood Market pharmacies, overseeing the business and compliance operations of a patient care organization.Marques' formal education includes attending the University of Florida and obtaining an undergraduate degree in Sports Management, and two master’s degrees in the specializations of International Business and Business Management. To add, he recently acquired a Six Sigma Green Belt certification through Villanova University. His passion for education has allowed him to take on the role of Adjunct Faculty with Bryant and Stratton College, in which he currently teaches in the disciplines of business administration, global management, and performance management. Last but not least, Marques has always had a passion for the community and social/medical causes. He is an active member of the One Hundred Black Men of America, Inc, served on the Board of Directors for the New York & New Jersey Minority Supplier Development Council (Upstate New York Committee), and was on the Board of Directors of the Epilepsy Foundation of Northeastern New York. His passion for accelerating the fight for a cure and saving the lives of those who suffer with epilepsy is close to his heart, and is the reason he chose to champion this cause. Marques has a beautiful wife and two children that are the inspiration to his perseverance and tenacity.
Jeff Klauk graduated from Florida Southern College in 2000. During his last three years at FSC, Jeff won the NCAA Division 2 National Championship. Jeff was also fortunate to win the Individual title his senior year. After graduating, Jeff turned professional in the fall of 2000 and the following year he qualified for the Web.com Tour. In 2003 he won his first professional golf tournament at the Web.com Wichita Open, which was one of two wins during his Web.com Tour career.
In 2006 Jeff experienced his first tonic-clonic seizure. It happened on a Friday night after he had finally played well the first two days of a tournament. Jeff was forced to withdraw from the event. About one month later he experienced his second tonic-clonic seizure. This seizure forced him to go home, undergo medical testing, and start prescribed medication. That was when he was diagnosed with having epilepsy. Thankfully, with the proper medication, Jeff’s tonic-clonic seizures were controlled.
In 2008, Jeff finished third on the Web.com money list and earned his PGA Tour card, a dream he had since he was a child. Jeff had one win and three 2nd place finishes in 2008 that helped him qualify for the PGA Tour. In 2009, during his rookie year on the PGA Tour, Jeff had three 4th place finishes allowing him to retain his exempt status. Jeff eventually finished 71st on the money list. He was able to play in The Players Championship, another life-long dream. Then, on Christmas Eve, as Jeff and his family where headed to church, he had his first complex partial seizure, which came as a shock to his family. The complex partial seizures didn’t happen every day, but they would happen several times a week that would last 1 to 2 minutes each. Jeff started 2011 on the PGA Tour, but after eight events, he realized that he needed to come home, figure out what was causing these seizures, and get some help.
Jeff tried many different medicines and had many tests done but was unsuccessful in finding a medication that could control his seizures. Finally, in April of 2012, Jeff underwent intracranial-monitoring surgery at Emory Hospital to locate the place in his brain where his seizures started.
The monitoring revealed that Jeff’s seizures were originating in the left frontal lobe, which is the part of the brain that controls motor skills. He decided not to proceed with a second surgery that would remove the spot in his brain where his seizures originated because of its location. He eventually tried a different medication called Vimpat, which he says changed his life and has controlled his seizures.
After a successful and long career in golf, Jeff recently announced that he will retire from the sport and focus more on his health, family, and charitable initiatives around epilepsy.
Daniel Perez is an attorney at Cole, Scott & Kissane P.A. law firm located in Miami. He received his J.D from Loyola University New Orleans College of Law where he also served as the President of the Student Bar Association. Mr. Perez has served his community for the past 4 years. In 2012, he become part of the Christopher Columbus High School Alumni board and began to serve as a lector for St. Theresa, Church of the Little Flower. In addition, he volunteers as an educator for the CCD program at Church of the Little Flower. Since 2014, he has served as the Vice Chair of the Hispanics Affairs committee of Miami Dade and is contributor with BLUE Missions Group.
Tarek Zakaria, MD
Dr. Tarek M. Zakaria is a board-certified neurologist who specializes in neurophysiology and epilepsy.
Prior to joining Memorial Healthcare System, Dr. Zakaria served as the director of the epilepsy program and as co-director of the epilepsy surgery program at Norton Neuroscience Institute in Louisville, Kentucky.
Dr. Zakaria earned his medical degree from Damascus University in 1998, and completed his internship in internal medicine at West Virginia University Charleston Area Medical center in 2005. He completed his residency in neurology at the University of Cincinnati Medical Center in 2008. He completed his fellowships in neurophysiology and in epilepsy at the Mayo Clinic College of Medicine, where he later served as assistant professor.