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Build your child's own epilepsy care notebook!

Care Plan & Seizure Action Plan

A patient's basic personal and medical information, including a Seizure Action Plan, which shows how to deal with a seizure in emergency situations.
[Care Plan & Seizure Action Plan PDF]
[Seizure-Observation-Record_v1 PDF]

Medical ID Card

A wallet-sized card designed to be carried by the child in his or her school back pack or wallet as a handy and reliable medical summary for school or emergency situations. The Medical ID card is a safe and reliable back up for reducing potential allergic reactions/interactions, intolerances or side effect profiles.
[Medical ID Card]

Seizure Log

A seizure tracking record
[Seizure Log English/Español PDF]

Medication List

A list of current and former medications and side effects
[Medication List English/Español PDF]

Medical History

An organizational section where you should keep your child's important, most recent medical records.

Family Resources

A number of useful tools for families of children with epilepsy

 

 

Transitional Care in Epilepsy:  Managing Seizure Disorders From Pediatrics To Adulthood

 

 

Useful Website Links

 

If you have a child with epilepsy

Epilepsy and My Child is a website designed for parents with input from parents. This comprehensive website contains information on the following topics: About Epilepsy, Just Diagnosed, Living with Epilepsy, Treatment, Raising Awareness and Resources and Connections.

Improving care for children with epilepsy

The EFOF is one of five sites nationwide to receive a Health Resources and Services Administration (HRSA) Project Access grant to Improve and Expand Services for Children with Chronic Healthcare Needs. Click here for more information on the national initiave for Project Access and here for to learn about what Florida's doing.

PCDH19 Alliance

If you have been diagnosed with PCDH19 Female Limited Epilepsy or are a female with difficult to control seizures or have a daughter with difficult to control seizures please visit PCDH19 Alliance for more information, and talk to your doctor about a PCDH19 test.

Medications for epilepsy

The No More Seizures website is maintained by the national Epilepsy Foundation. Click here to view its comprehensive medication database that is both current and accurate. It features both the brand name and generic of each anti-epileptic drug.

Seizure Tracker

www.seizuretracker.com

National Health Care Transition Center

http://www.gottransition.org/home

Stop Bullying

http://www.StopBullying.gov

Aaron Gregory Riley College Scholarship

The scholarship to Ohio Wesleyan University was created in memory of Aaron at his alma mater. He died in 2011 (age 21) in a drowning accident related to a seizure.

http://choose.owu.edu/pdfs/AaronGregoryRileyScholarship.pdf

Special Needs Parenting Handbook

Raising a child with special needs can be difficult, but form that difficulty is born a greater appreciation for the human spirit. This “handbook” offers resources for parents at every stage of the journey of caring for their special needs children. From learning more about special needs to picking a school, planning a financial future, and getting past the bullying and discrimination that so often plague people with special needs.

http://phdinspecialeducation.com/special-needs-parenting-handbook/