Support group offers a connection to others in similar circumstances

 

Vero Beach, FL, April 16, 2012 – For many people with epilepsy, the fear of another seizure and a feeling of isolation compounds the normal stress of everyday life. A new support group will offer a connection to others in similar circumstances, and to benefit and learn from other’s experiences. The support group, sponsored by the Epilepsy Foundation of Florida, will meet every third Thursday of the month from 6:30 – 7:30 at the United Way Center, starting this May 17, 2012.

 

Each year, some 50,000 Americans die from seizures and related causes. More than 375,000 Floridians living with epilepsy, the third most common neurological disorder in the US after Alzheimer’s and stroke. About as many people have epilepsy as have cerebral palsy, multiple sclerosis and Parkinson’s disease – combined. More people die yearly from seizure-related causes than die from breast cancer.

 

The Epilepsy Foundation of Florida wishes to raise awareness about epilepsy since living with epilepsy is difficult in lots of ways, but it is often the stigma and ignorance surrounding epilepsy that stops people from coming to grips with this widespread and devastating disorder.

 

The Support Group will take place at the United Way Center, 1836 14th Avenue, 2nd Floor, Vero Beach, 32960. For further information please call the Epilepsy Foundation of Florida on 561-478-6515.

Fabulous 50’s party at local Mulligan’s to raise awareness and funds

 

West Palm Beach, FL, May 31, 2012 – Mulligan’s Beach House Bar & Grill in four Treasure Coast locations is hosting a Fabulous 50’s party on August 16th from 5pm to 8pm. Mulligan’s will be donating 10% of all sales during the party to the Epilepsy Foundation of Florida for its youth programs.

 

Epilepsy affects more than 326,000 children under the age of 15. Each year, some 50,000 Americans die from seizures and related causes. More than 375,000 Floridians live with epilepsy, the third most common neurological disorder in the US after Alzheimer’s and stroke. About as many people have epilepsy as have cerebral palsy, multiple sclerosis and Parkinson’s disease – combined. More people die yearly from seizure-related causes than die from breast cancer.

 

Three Treasure Coast youth, Justin Parsons, Chris Flaig, and Randy Visser, will represent the Epilepsy Foundation at the Fabulous 50’s party. Attendees are encouraged to dress in 50’s garb and to bring the family since kids eat free. There will be many activities including crafts, face painting, toys, balloons and a special appearance by Rock-n-Roll Spongebob.

 

Chris Flaig notes that he and the other youth “wish to raise awareness about epilepsy since living with epilepsy is difficult in lots of ways, but it is often the stigma and ignorance surrounding epilepsy that stops people from coming to grips with this widespread and devastating disorder”.

 

The events will take place at the Stuart, Jensen, Vero and Sebastian locations from 5-8pm on August 16. For further information, contact one of the participating Mulligan’s locations or visit the Epilepsy Foundation of Florida website: www.EpilepsyFLA.org.

The Epilepsy Foundation of Florida (EFOF) received a $35,000 grant from the Peacock Foundation of Miami, Florida to institute a Quality Assurance function for Medical Case Management Programs and to hire an additional Case Manager.

 

“We are thrilled to continue our collaboration with the Peacock Foundation, Inc. There is a wonderful alignment between our two organizations in working to help South Floridians achieve self-sufficiency. For 40 years the Epilepsy Foundation of Florida has been serving Floridians living with seizure disorders and their families; a key focus is to increase our clients’ independence to ensure they can continue with school, re-enter or stay in the workforce and take care of their families” said the EFOF chief executive officer, Karen Basha Egozi.

 

The particular emphasis of this grant is to ensure EFOF has the necessary tools to improve effectiveness, efficiency and flexibility while also allowing the organization to keep up with an increased demand for services. To achieve this, the grant will allow for establishing a quality assurance specialist and an additional medical case manager.

 

“I’m pleased to see the partnership and collaboration between two terrific Florida organizations, working together to meet the needs of so many Floridians. I’m also impressed to see how EFOF continues to strive for excellence as it looks for ways to improve their delivery of services” noted Florida State Representative Jeanette Nuñez who represents the district in which the EFOF headquarters resides. Rep. Nuñez went on to comment “Epilepsy is one of those chronic and common medical conditions yet many people are unaware of its prevalence. A recent Institute of Medicine report noted that 1 in 26 people will develop epilepsy in their lifetime; ignorance about this disorder is not a luxury our community can afford.”

 

Egozi noted “I am proud this funder recognizes the importance of quality control in striving for excellence in serving the needs of people with epilepsy. We thank the Peacock Foundation, Inc. for its fiscally responsible and compassionate vision in helping others.”

The Epilepsy Foundation of Florida (EFOF) is extending a warm Florida welcome to Irish cyclist Simon Hutchinson who is participating in the first ever race to cycle around the world.  Hutchinson is the sole Irish competitor cycling in the 18,000 mile/28,800 kilometer World Cycle Racing – Grand Tour. In addition to vying for the coveted Guinness World Record for the ‘Fastest Circumnavigation of the Globe by Bicycle’, he is also raising much needed awareness and funds for Brainwave, the Irish Epilepsy Association. 

 

“The Epilepsy Foundation of Florida was thrilled to be able greet Simon as he pedaled into Jacksonville, his first stop in the Sunshine State after a long journey that started in London in February” said Karen Basha Egozi, chief executive officer of EFOF.  The 24 year-old Hutchinson’s route will then take him to two other Florida points, the last being Miami late Friday evening or early Saturday morning. Simon will then head to Peru Saturday night before returning to Ireland and the UK.   

 

Simon chose Brainwave because a cousin of his has a rare type of epilepsy.  As he stated on his website, Simon’s Epic Cycle “This type of epilepsy has such a huge effect on her and her family and I’ve always wished I could do something to help her and others in a similar situation.  I picked Brainwave not only because they’re a charity but also because they invest in research and strive to educate and inform people about this often hidden disability.” 

 

According to Egozi, “You will find that around the globe, people living with epilepsy face similar challenges, ranging from access to appropriate medical care to contending with the misperceptions, stigma and discrimination that can accompany a diagnosis.  In Ireland, 37,000 people are affected by epilepsy and in the state of Florida, 375,000 are living with epilepsy.  We are proud to stand shoulder to shoulder – or should I say pedal to pedal – in support of Simon’s heroic effort and we are grateful for the much needed attention he is bringing to epilepsy. “ 

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Frequently Asked Questions

What is the Epilepsy Foundation Rx Card?

The Epilepsy Foundation Rx Card is a FREE discount prescription assistance program. The program was launched to help uninsured and underinsured individuals afford their prescriptions.

 

Read more: Epilepsy Foundation Of Florida Discount Prescription Assistance Program