Palm Beach 2008 Run-Walk Generates Much-Needed Funding, Raises Awareness

Thursday, November 20, 2008

Palm Beach 2008 Run-Walk Generates Much-Needed Funding, Raises Awareness

WEST PALM BEACH, Fla. (November 20, 2008) -- The Epilepsy Foundation of Florida’s

(EFOF) Palm Beach chapter is $62,000 richer in funding following the organization’s 2nd annual

Walk Tall Run Free Run-Walk for Epilepsy.

Held November 8, the event drew more than 350 participants to Okeeheelee Park in West Palm Beach for a scenic run-walk, a variety of kid- and adult-friendly recreational activities, guest appearances by Ronald McDonald and Lion Country’s Rory the lion, raffles and a silent auction and children’s injury prevention activities, including bicycle helmets distribution.

The all-day affair was part of the organization’s Epilepsy Awareness Month campaign, held annually in November to generate funds for those with epilepsy and their families, as well as create greater understanding about the condition.

The Foundation’s Palm Beach Chapter provides teen, parent and adult support groups, summer camp, medical and case management services, prevention and education programs, and information and referral services in Palm Beach, Indian River, Martin, Okeechobee and St. Lucie counties.

“Although the event is only in its second year, it was amazing how many local citizens and businesses stepped up to the plate to ensure this was a success on every level,” said Novette Green, Advanced Registered Nurse Practitioner and EFOF board member. “From sponsors to donors to walkers and runners who collected pledges, we’re thankful to all involved and are inspired by their commitment to enhanced services for those with this condition.”

Event sponsors included Pediatric Neurologists of the Palm Beaches (platinum level); Rock Legal Services & Investigations (gold level); St. Mary’s Medical Center, Cyberonics and Office Depot Foundation (silver level); and American Awning, Coaters Law Firm, Western Palm Beach County, Starbucks, the DiPersico Family and Valeant Pharmaceuticals.

Among the event’s in-kind donors were Crown Trophies, Ice Cream Club, Runners Depot, Strathmore Bagels, Starbucks, McDonalds, Dunkin Donuts, Samix Enterprises, Sandals Resort, Sunny 104.3, Whole Foods, Publix Wellington, Nike, Garden’s Mall, G&C Hobbies.

The John Hanes family was named Top Family Team in pledges, while Jesse Moss secured the Most Individual Pledges nod. Wynnebrook Elementary’s showing of 40 parents and kids secured the school the Most Walkers On A Team award.

Run-Walk male winners were Robert Dabrowski and runners-up Jasper Bell and Alex Fedorov.

The top three female racers were Melissa Griffen, Donna Jenks and Sheri Dumont.

About Epilepsy & Epilepsy Awareness Month

Held annually in November, the mission of Epilepsy Awareness Month is to create heightened awareness about the disorder, dispel myths and the stigma often associated with those who suffer from epilepsy, and to generate funds to benefit those who are afflicted. According to the National Epilepsy Foundation, 50 million people worldwide and more than 3 million people of all ages in the U.S. have some form of the disorder. About 200,000 new cases of seizure disorders and epilepsy are diagnosed each year, of which 45,000 are under the age of 15. It generates an estimated $12.5 billion in direct and indirect costs annually.

Among the well-known contemporary personalities with epilepsy are legendary rock star Neil Young, Hip-Hop’s DJ Hapa, and professional football players Alan Faneca of the New York Jets and Samari Rolle of the Baltimore Ravens. Actor Greg Grunberg, star of the NBC hit series “Heroes,” is a staunch advocate of epilepsy awareness on behalf of his son, Jake, who has epilepsy. Also believed to have had the affliction: Alexander the Great, Sir Isaac Newton, Charles Dickens, Leo Tolstoy and Vincent Van Gogh.

About the Epilepsy Foundation of Florida

The Epilepsy Foundation of Florida works to ensure that people with seizures are able to participate in all life experiences; improves how people with epilepsy are perceived, accepted and valued in society; and provides medical care, prevention and education, case management, support groups, children’s camps and advocacy for persons with epilepsy. The Epilepsy Foundation of Florida is the lead agency for Epilepsy service programs sponsored by the State of Florida, and is also the sole licensee of the National Epilepsy Foundation in the state. The agency serves 31 counties throughout Florida and has offices in Miami, Ft. Lauderdale, Gainesville, Jacksonville and Palm Beach. For more information, please visit www.epilepsyfla.org.

Epilepsy Foundation of Florida Achieves National Epilepsy Foundation's Standards of Excellence Certification

Monday, April 13, 2009

Miami, Fla. – (April 13, 2009) – Eric R. Hargis, president and CEO of the Epilepsy Foundation, recently announced that the Epilepsy Foundation of Florida (EFOF) has achieved the Epilepsy Foundation Standards of Excellence. EFOF is one of only three Epilepsy Foundation affiliates in the nation to earn the honor.

The Standards define what people with epilepsy should expect from an Epilepsy Foundation affiliate performing at the highest level. Affiliates are evaluated based on 35 Standards of Excellence that reflect the highest level of quality in the following areas: mission, governance, operations, finance, advocacy, research, communications, programs and development. The Epilepsy Foundation Standards Task Group implemented the process for affiliates to pursue and achieve the certification, while celebrating the uniqueness and diversity of each organization.
“Through the Standards of Excellence, we are furthering our efforts to become a more unified and mission-focused organization,” said Hargis. “Congratulations to EFOF’s Executive Director Karen Basha Egozi, Board President Pat Dean, and all of its staff and volunteers for attaining this distinction.”

“All of us at EFOF are honored to have achieved the Standards of Excellence,” said Basha Egozi. “Through our extensive programs and services, we strive to achieve excellence every day in serving the estimated 360,000 Floridians who suffer from epilepsy and their families, regardless of their financial situations.”

EFOF, established in 1971 as a not-for-profit 501(c)(3), serves as the lead advocate for the rights and needs of people with epilepsy and seizure disorders at the local, county and state level. EFOF provides valuable services, regardless of financial situation, to individuals and their families including advocacy; case management; information, referral, and support; medical services, neuropsychological services, prevention and education, individual and family counseling, research, development and fundraising, resource materials, support groups, and children’s camp. For more information, visit www.epilepsyfla.orgor call 305-670-4949.

Epilepsy Foundation of Florida Raised Funds At Opening of New South Beach Restaurant, B&B

Friday, August 28, 2009

Epilepsy Foundation of Florida Raised Funds
At Opening of New South Beach Restaurant, B&B

Miami Beach, FL, August 28, 2009 – The Epilepsy Foundation of Florida (EFOF) raised funds in conjunction with the opening of B&B – Burgers and Beer Joint on Bay Road. Guests gathered in B&B’s swanky upstairs lounge while enjoying Finlandia Vodka drinks and the restaurant’s famed sliders; the event was organized by Premiere Entertainment of Miami.
Funds raised help the nearly 360,000 Floridians living with epilepsy and seizure disorders. Despite the misconceptions and stigma surrounding it, epilepsy and seizures can often be controlled. EFOF plans a series of events in November in cities throughout Florida to raise funds and educate the public during Epilepsy Awareness Month.

“We are grateful to B&B and Premier for hosting this fundraising event to help provide valuable services to individuals with epilepsy and their families,” said Karen Egozi, Executive Director of the EFOF.
Established in 1971 as a not-for-profit 501(c)(3), EFOF serves as the lead advocate for the rights and needs of people with epilepsy and seizure disorders at the local, county and state level. EFOF provides valuable services, regardless of financial situation, to individuals and their families including advocacy; case management; information, referral, and support; medical services, neuropsychological services, prevention and education, individual and family counseling, research, development and fundraising, resource materials, support groups, and children’s camp. For more information, visit www.epilepsyfla.org or call305-670-4949.