Jeanne A. Carpenter Epilepsy Legal Defense Fund
Legal Defense Fund website is www.epilepsylegal.org
Bicycle Helmet Data
Bicycle Helmet Data
In 2009, Florida reported more pedalcyclist (including unicyclist, bicyclist, tricyclist, etc.) fatalities for all ages than any other state (2009 National Highway Traffic Safety Association, Traffic Safety Facts). Bicycles are linked to more childhood injuries than any other consumer product except the automobile. More than 70 percent of children, ages 5–14, (27.7 million) ride bicycles (National Safe Kids Campaign Fact Sheet 2007). In 2009, 7,282 children, ages 5–14, were killed or injured and treated in a hospital, due to bicycle-related crashes in Florida (Department of Health, Vital Statistics and Agency for Health Care Administration, Hospital Discharge Data).
J. KIFFIN PENRY PATIENT TRAVEL ASSISTANCE FUND
J. KIFFIN PENRY PATIENT TRAVEL ASSISTANCE FUND
Request for Travel Assistance Application
Criteria for Eligibility and Program Guidelines
NEW APPLICATION(effective 1/29/2013): [J. Kiffin Penry-Travel-Application-1-29-2013.pdf]
Resources & Documents
Build your child's own epilepsy care notebook!
Care Plan & Seizure Action Plan
A patient's basic personal and medical information, including a Seizure Action Plan, which shows how to deal with a seizure in emergency situations.
[Care Plan & Seizure Action Plan PDF]
[Seizure-Observation-Record_v1 PDF]
Medical ID Card
A wallet-sized card designed to be carried by the child in his or her school back pack or wallet as a handy and reliable medical summary for school or emergency situations. The Medical ID card is a safe and reliable back up for reducing potential allergic reactions/interactions, intolerances or side effect profiles.
[Medical ID Card]
Seizure Log
A seizure tracking record
[Seizure Log English/Español PDF]
Medication List
A list of current and former medications and side effects
[Medication List English/Español PDF]
Medical History
An organizational section where you should keep your child's important, most recent medical records.
Family Resources
A number of useful tools for families of children with epilepsy
[Epilepsy Medications English PDF]
[Medicamentos Epilépticos Español PDF]
[First Aid Charts English/Español]
[Doctor's Visit Notes English Español]
[EF_Parent_Toolkit-Spanish PDF]
[Epilepsy_Know_the_facts PDF]
[Epilepsy_Tool_Kit PDF]
[Epilepsy_You_And_Your_Child_Information_For_Parents PDF]
[La_epilepsia_y_los_ninos PDF]
[Parent_Questionnaire PDF]
[ParentQuestionnaire_in_Spanish PDF]
[A_Child's_Guide_to_Seizure_Disorder PDF]
Useful Website Links
If you have a child with epilepsy
Epilepsy and My Child is a website designed for parents with input from parents. This comprehensive website contains information on the following topics: About Epilepsy, Just Diagnosed, Living with Epilepsy, Treatment, Raising Awareness and Resources and Connections.
Improving care for children with epilepsy
The EFOF is one of five sites nationwide to receive a Health Resources and Services Administration (HRSA) Project Access grant to Improve and Expand Services for Children with Chronic Healthcare Needs. Click here for more information on the national initiave for Project Access and here for to learn about what Florida's doing.
Medications for epilepsy
The No More Seizures website is maintained by the national Epilepsy Foundation. Click here to view its comprehensive medication database that is both current and accurate. It features both the brand name and generic of each anti-epileptic drug.
Seizure Tracker
National Health Care Transition Center
http://www.gottransition.org/home
Stop Bullying
Aaron Gregory Riley College Scholarship
The scholarship to Ohio Wesleyan University was created in memory of Aaron at his alma mater. He died in 2011 (age 21) in a drowning accident related to a seizure.
