Build your child’s own epilepsy care notebook:
Care Plan & Seizure Action Plan
A patient’s basic personal and medical information, including a Seizure Action Plan, which shows how to deal with a seizure in emergency situations.
[Care Plan & Seizure Action Plan PDF]
[Seizure Observation Record_PDF]
Medical ID Card
A wallet-sized card designed to be carried by the child in his or her school back pack or wallet as a handy and reliable medical summary for school or emergency situations. The Medical ID card is a safe and reliable back up for reducing potential allergic reactions/interactions, intolerances or side effect profiles.
[Medical ID Card]
A seizure tracking record [Seizure Log English/Español PDF]
A list of current and former medications and side effects [Medication List English/Español PDF]
An organizational section where you should keep your child’s important, most recent medical records.
A number of useful tools for families of children with epilepsy
- [Epilepsy Medications English PDF]
- [Medicamentos Epilépticos Español PDF]
- [First Aid Charts English/Español]
- [Doctor’s Visit Notes English Español]
- [Parent_Toolkit-Spanish PDF]
- [Epilepsy_Know_the_facts PDF]
- [Epilepsy_Toolkit PDF]
- [Parent_Questionnaire PDF]
- [Parent Questionnaire_in_Spanish PDF]
- [A_Child’s_Guide_to_Seizures PDF]
- [Como Reconocer Los Sutiles Sintomas de La Epilepsia Español PDF]
- [Hechos sobre los ataques o convulsuiones Español PDF]
- [Kids and Seizures know the hidden signs PDF]
- [Managing Epilepsy & Seizures]
- [Managing Epilepsy & Seizures – Spanish]
- [Understanding the Behavioral Aspects of Epilepsy PDF]
Special Needs Parenting Handbook
Raising a child with special needs can be difficult, but from that difficulty is born a greater appreciation for the human spirit. This “handbook” offers resources for parents at every stage of the journey of caring for their special needs children. From learning more about special needs to picking a school, planning a financial future, and getting past the bullying and discrimination that so often plague people with special needs. http://phdinspecialeducation.com/special-needs-parenting-handbook/
If you have a child with epilepsy
Epilepsy and My Child is a website designed for parents with input from parents. This comprehensive website contains information on the following topics: About Epilepsy, Just Diagnosed, Living with Epilepsy, Treatment, Raising Awareness and Resources and Connections.
Improving care for children with epilepsy
Click here for more information on the national initiative for Project Access.
If you have been diagnosed with PCDH19 Female Limited Epilepsy or are a female with difficult to control seizures or have a daughter with difficult to control seizures please visit PCDH19 Alliance for more information, and talk to your doctor about a PCDH19 test.
Medications for epilepsy
National Health Care Transition Center
Visit www.OnlineSchools.org for a Guide on Understanding Bullying and Cyberbullying
Click here for a Cyberbullying Awareness and Avoidance Resource Guide