Care Plan & Seizure Action Plan

A patient’s basic personal and medical information, including a Seizure Action Plan, which shows how to deal with a seizure in emergency situations.
[Care Plan & Seizure Action Plan PDF]
[Seizure Observation Record_PDF]

Medical ID Card

A wallet-sized card designed to be carried by the child in his or her school back pack or wallet as a handy and reliable medical summary for school or emergency situations. The Medical ID card is a safe and reliable back up for reducing potential allergic reactions/interactions, intolerances or side effect profiles.
[Medical ID Card]

Seizure Log

A seizure tracking record [Seizure Log English/Español PDF]

Medication List

A list of current and former medications and side effects [Medication List English/Español PDF]

Medical History

An organizational section where you should keep your child’s important, most recent medical records.

General Resources

A number of useful tools for families of children with epilepsy

Special Needs Parenting Handbook

Raising a child with special needs can be difficult, but from that difficulty is born a greater appreciation for the human spirit. This “handbook” offers resources for parents at every stage of the journey of caring for their special needs children. From learning more about special needs to picking a school, planning a financial future, and getting past the bullying and discrimination that so often plague people with special needshttp://phdinspecialeducation.com/special-needs-parenting-handbook/

If you have a child with epilepsy

Epilepsy and My Child is a website designed for parents with input from parents. This comprehensive website contains information on the following topics: About Epilepsy, Just Diagnosed, Living with Epilepsy, Treatment, Raising Awareness and Resources and Connections.

Improving care for children with epilepsy

Click here for more information on the national initiative for Project Access.

PCDH19 Alliance

If you have been diagnosed with PCDH19 Female Limited Epilepsy or are a female with difficult to control seizures or have a daughter with difficult to control seizures please visit PCDH19 Alliance for more information, and talk to your doctor about a PCDH19 test.

Medications for epilepsy

Seizure Medication List 

Click here for Patient and Medication Assistance Programs

Seizure Tracker

www.seizuretracker.com

National Health Care Transition Center

http://www.gottransition.org

Stop Bullying

http://www.StopBullying.gov

Visit www.OnlineSchools.org for a Guide on Understanding Bullying and Cyberbullying

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