Secure Greater Funding for a Better Treatments and Programs as well as a Cure
- Advocate to the Florida Legislature and the Governor the importance of epilepsy funding and the need for funding increases for Floridians with epilepsy.
- EFOF will work with the national Epilepsy Foundation in Congress and the White House to support a strong fiscal environment that provides a safety net of programs for people with epilepsy and related conditions. Our top priority programs for funding increases are:
- Epilepsy research at the National Institutes of Health
- Epilepsy Programs at the Centers for Disease Control and Prevention (CDC)
- Research in the Food and Drug Administration (FDA) and other agencies that include studies on the safety and efficacy of antiepilepsy drugs (AEDs), including bioequivalence research
Improve Access to Medical Care, Medications and Treatment
- Ensure the needs of people with epilepsy are met in implementing insurance reforms under the Affordable Care Act.
- Advocate for reasonable access to affordable and quality epilepsy care and treatments in public and private health insurance.
- Support protections that prevent discrimination based on health status in all insurance products, including any provisions that limit access or coverage for pre-existing conditions like epilepsy.
- Doctor prescribed medications is available and affordable to those with epilepsy.
- Support and advocate for research and legislation for the implementation and access of medical marijuana for patients’ with epilepsy.
Stop Stigma and Discrimination Against People with Epilepsy
- Advocate for epilepsy-specific legislation aimed at public awareness about epilepsy and seizures.
- Prohibit the use of restraints and seclusion for children with epilepsy in the school setting.
- Promote employment opportunities for people with epilepsy including efforts to reauthorize the Rehabilitation Act of 1973 and Workforce Investment Act
- Support reauthorization of the Developmental Disabilities Assistance and Bill of Rights Act..
- Support full implementation of the ADA and other civil rights laws that protect the rights of people with epilepsy.
- Support effective enforcement of the Individuals with Disabilities Education Act and the Elementary and Secondary Education Act including full funding for these programs.
Capitol Day & Purple = Red + Blue ReceptionThe Tallahassee-based Day at the Capitol event allows for executive staff, board members, donors and key stakeholders from around the state to come together during the Legislative Session to meet with legislators, review policy and host the organization’s “Red + Blue = Purple” Fundraiser. The evening reception will focus on recognizing those state leaders who have been supportive of the Epilepsy Foundation of Florida and of epilepsy sufferers as a whole across Florida.
Representative Richard Corcoran, Representative Janet Cruz, Representative Jose Felix Diaz, Senator Eleanor Sobel, Senator Oscar Braynon II, Senator Rob Bradley
Teens Speak Up!
Meet Justin Tyler Millares- Florida's 2016 Teen Speak Up Representative
Teens Speak Up! is a program that provides an opportunity for teens with epilepsy and their parents to visit the nation's capital, receive advocacy training, meet with their legislators, and tell their personal stories. Teens Speak Up! is part of the Public Policy Institute. Teens from across the country are nominated by affiliates and selected by the National Foundation to participate in the program. After receiving training at TSU, each teen is asked to turn that training into action in their respective home districts through our Year of Service program.