Jonathan Dale is a remarkable young man. He has intractable epilepsy which means that his seizures are not controlled by medication. Despite having daily seizures, Jonny is always smiling and ready for whatever new adventure the day may bring. Epilepsy does not define him, it is just another lion to
Clayton Feig Legacy Fund – Faces of Epilepsy
- 1 in 26 people will develop epilepsy at some point in their lifetime, and 150,000 new cases of epilepsy will be diagnosed in the United States each year.
- Despite the common nature of this disorder, every person faces a unique set of challenges and solutions. Most agree that having the opportunity to share their stories and give others a window into their experience can be truly uplifting.
- Currently 400,000 Floridians are living with this disorder, and through the Epilepsy Foundation of Florida’s 1 in 26 campaign, they can share their stories.
- Each story is different. Watch the videos below to get to know some of these amazing people.
- Share these profiles with your friends, family, co-workers and acquaintances, and join us in our efforts to spread awareness.
- Contact Ilana Bitton, Director of Marketing, at email@example.com to share your story and be featured on our blog!
“I have always lived what you might call a very typical and normal lifestyle. I come from a strong, supportive family and I value my friends and relatives immensely. However, at age fourteen, my happy go lucky lifestyle began to change. I had my first seizure and was diagnosed with epileps
I was diagnosed with epilepsy my first semester at college when I was 18 years old. Before then I thought I was invincible. I didn’t have a care in the world, especially regarding my health. I was a high school athlete with no physical or mental disabilities. Everything seemed to be going well unt
“My name is Jay Hennessy, I was diagnosed with Post Traumatic Epilepsy (PTE) from a Traumatic Brain Injury (TBI) in 2010, which marked the beginning of a significant journey in my life as I stand before you today. Today, I am both humbled and honored to be a part of this journey. Humbled to be
Molly McCann was thirteen-years-old when she was diagnosed with epilepsy. She recently shared her story, which is relatable to so many young people affected by the disorder, with the Epilepsy Foundation of Florida. Molly grew up in Tallahassee, FL as an athlete—physical activity had always
Richie Terrell is an amazing example of how EFOF works with legislators to help our members and veterans. EFOF has helped Richie along his journey to make sure that he has what he needs to represent his epilepsy as clearly and medically correct as possible. He used EFOF resources to write his legal
You never forget the first time. My wife and I stood helplessly as a debilitating seizure took over our young daughter’s defenseless body. In that moment, our greatest fears as parents unfolding before our eyes. In just under a year, we watched our daughter’s seizures become increasingly
There’s no way to adequately describe how terrifying and disturbing it is to witness your child having a seizure. How helpless you feel. How angry and distraught. How desperately you want answers. How much you worry about when the next one will come, agonize because you can’t keep it from happen
With the matinee-idol good looks of a young Clooney, Carlos Gimenez sits listening to his guest in the subtly appointed conference room of the public advocacy firm where he spends most days he’s not kiting around the country and the world for his clients and his city. His penetrating but affable e
Life was always a struggle. At age seven, I was outside playing with my friends when suddenly I had a grandmal seizure. After I was rushed to the hospital, the doctors could not control my epileptic seizures and weren’t sure if I was going to survive. After a week in the hospital and numerous