Clayton Feig Legacy Fund – Faces of Epilepsy

  • 1 in 26 people will develop epilepsy at some point in their lifetime, and 150,000 new cases of epilepsy will be diagnosed in the United States each year.
  • Despite the common nature of this disorder, every person faces a unique set of challenges and solutions. Most agree that having the opportunity to share their stories and give others a window into their experience can be truly uplifting.
  • Currently 400,000 Floridians are living with this disorder, and through the Epilepsy Foundation of Florida’s 1 in 26 campaign, they can share their stories.
  • Each story is different. Watch the videos below to get to know some of these amazing people.
  • Share these profiles with your friends, family, co-workers and acquaintances, and join us in our efforts to spread awareness.
  • Contact Ilana Bitton, Director of Marketing, at ibitton@efof.org to share your story and be featured on our blog!

Stories of Epilepsy

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Mary Lawrence

During my childhood and throughout adulthood, I have had trouble with my parents, mentors, and acquaintances understanding my epilepsy. Some called my seizures fits/tantrums or even disrespect. This program has given clarity and realization of details on this issue. I first became involved with EFOF

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Joshua Pruitt

By: Kerrie Pruitt, on behalf of her son, Joshua Pruitt At the age of six, Joshua had his first seizure. He had complained of a headache, so I gave him some children’s Tylenol and put him down for a nap. I went to wake him and his eyes were rolled to the side. I kept asking him to […]

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Elizabeth Perez

My name is Elizabeth Perez. I am 34 years old.  The day that I was supposed to be born, my mom started having contractions so she went to the doctor. The doctor told my  mom she was not ready to deliver and he sent her home. My mom returned the same day to the hospital […]

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Kayleigh Gallo

Sunday, April 20, 2014, at around 7 PM, was a game changer for me.  I thought that I was suffering from the flu or some sort of bug because my younger brother, Tanner, had gotten sick 2 days before.  I had a fever, a headache, the chills, was a bit sluggish, and just not right.  […]

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MEREDITH PENCE

Meredith Pence doesn’t know what life is like without seizures. When she was six months old, her first tonic clonic seizure occurred, and they have been a fixture in her life ever since. Diagnosed with Dravet Syndrome, a rare form of epilepsy, seizure control is difficult, but she is not a can

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GILANNY AMAYA

When I first came to the Epilepsy Foundation of Florida, I definitely didn’t know what I had, at all. I also didn’t have any help to find out. The Epilepsy Foundation of Florida greatly helped with all of those conundrums mentioned. Also, to get mental help with Support Groups has connected me t

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I HAVE EPILEPSY, BUT IT DOESN’T HAVE ME

Written by Heather Kidd Hi, my name is Heather, and I would like to take you on a journey through my life with epilepsy. Yes, I have epilepsy but it doesn’t have me. I was diagnosed with epilepsy when I was 12 years old. My parents back then didn’t know much about epilepsy. We are […]

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Yesenia’s Story

When the Epilepsy Foundation of Florida told me they wanted to publish my story in their issue at the beginning I was hesitant. I asked my mom and she said yes. Once the days went by I knew writing again will bring me back to memories I didn’t know existed. I had to question my […]

Michael Bowen’s Story

I had my first seizure when I was 13.  It was a Petit Mal, meaning I did not collapse but was not aware or in control of my actions and words.  While giving a presentation in English class the rails came off; mid speech I began rambling, acting strangely and cursing.  School officials dragged me,

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Katia Philippeaux’s Story

Robert was only 18-years-old when he passed away from epilepsy. I will never forget that early Thursday morning when I was awoken to the loud thumps of my brother hitting his wooden head board as he seized. I instantly rushed into his room only to find him unresponsive and gasping for air. He had se

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